Mashawna ThompsonвЂ™s daughter, Lyra, arrived to the planet with frequently pale epidermis and a full head of nearly-transparent locks. By all measures, she ended up being stunning. Then again Mashawna experienced that minute that every brand new moms and dads fearedвЂ“the medical practioners suspected that one thing ended up being вЂњwrong.вЂќ Finally, infant Lyra had been identified as having albinism.
Many individuals are new to the expression вЂњalbinism,вЂќ but most people has heard about вЂњalbinos.вЂќ Which is just the tip of this iceberg of misunderstandings.
While Lyra, that is now a thriving 9-year-old, has many real challenges because of her condition вЂ” she’s bad vision, light sensitivity, and painful and sensitive epidermis вЂ” the obstacle that is greatest that this family members has faced is the multitude of misunderstandings that individuals have actually about albinism.
Based on Mashawna, whom blogs at Parent of a kid With Albinism, вЂњIt really bothers me personally when individuals simply stare, which takes place A LOT. (más…)